Inaccessible, unacceptable and unaccountable

A major new research report into the provision of paediatric continence supplies reveals serious failings by health and social care bodies.

We’re asking for your support to demand the immediate development of national, fit-for-purpose guidelines for paediatric continence services for disabled children.

This can make normal activities such as learning, playing or simply experiencing the world a huge challenge. Through our research we offer solutions and advice to help these children and their families enjoy lives full of hope and discovery.

Research is the foundation for all our work

Whether we're providing an innovative solution to a problem or new research on an existing condition, we partner with our experts to produce research-driven, evidence-based services, advice and support.

We rely on donations to continue our vital work helping children with brain conditions and their families discover a better life together.

I need advice on

Getting the right education for your child – and sometimes just getting them there – can be a challenge.

We have guides to help you access the the right education for your child in England and Wales.

We also have guides on school transport in England and Wales.

We have a wide range of resources that help parents and carers access legal, social and financial help.

Download a step-by-step guide to filling in the Disability Living Allowance Claim Form.

Our Accessing Public Services Toolkit offers solutions to common problems when dealing with statutory agencies.

View information in our Legal, Social and Financial section.

At Cerebra we provide support and advice to help your child – and everyone in your family – get a good night’s sleep.

Download our Sleep Guide or look at our other sleep resources.

Tackle some of the most common sleep problems with some quick tips from our Sleep Cards.

Contact our sleep team for one-to-one help.

We all know that mental health is as important as physical health. Here are some resources to help you look after yourself and your loved ones.

Our Factsheet on Emotional Wellbeing looks at the importance of looking after yourself if you are a parent or carer.

We also have a Guide to Anxiety to help you spot signs of anxiety in your child and how to help them.

Toilet training can have a number of different causes and as a result require a range of approaches to manage and resolve issues.

Our Guide for Parents helps you understand your child’s individual needs when toilet training.

Our infographic Guide to Toilet Training is a visual aid to help you understand common problems and offers techniques to help.

Some behaviours are challenging for professionals and teachers as well carers and parents looking after children with a brain condition.

Download our Managing Challenging Behaviour Factsheet.

Our Guide to Pain helps you identify and manage pain in a child who is unable to communicate verbally.

Knowledge based on current research gives you the power to help your child, whatever their diagnosis.

You can borrow a book on your child’s condition from our library to help your understanding.

Our Guide to Research About Childhood Brain Conditions provides an introduction to research and offers advice on how to find good quality research and information.

Support for Natasha and Riley

We were delighted to receive this feedback from mum Natasha who sought help from our Sleep Service for her and son Riley. Three-year-old Riley loves trains, ...

Pioneering Innovation Partnership Scheme

We recently attended an event to celebrate 50 years of the Knowledge Transfer Partnership (KTP). The KTP is one of the UK’s longest standing initiatives connecting ...
Cerebra, for children with brain conditions our toy library for borrowing toys.

Cerebra gains PIF TICK accreditation to become a ‘trusted information creator’

Cerebra has been awarded the PIF TICK – the UK’s only assessed quality mark for print and online health and care information. To become a ‘trusted ...

I need advice on

education and transport

Getting the right education for your child – and sometimes just getting them there – can be a challenge.

We have guides to help you access the the right education for your child in England and Wales.

We also have guides on school transport in England and Wales.

DLA and accessing public services

We have a wide range of resources that help parents and carers access legal, social and financial help.

Download a step-by-step guide to filling in the Disability Living Allowance Claim Form.

Our Accessing Public Services Toolkit offers solutions to common problems when dealing with statutory agencies.

View information in our Legal, Social and Financial section.

getting some sleep

At Cerebra we provide support and advice to help your child – and everyone in your family – get a good night’s sleep.

Download our Sleep Guide or look at our other sleep resources.

Tackle some of the most common sleep problems with some quick tips from our Sleep Cards.

Contact our sleep team for one-to-one help.

stress and emotional wellbeing

We all know that mental health is as important as physical health. Here are some resources to help you look after yourself and your loved ones.

Our Factsheet on Emotional Wellbeing looks at the importance of looking after yourself if you are a parent or carer.

We also have a Guide to Anxiety to help you spot signs of anxiety in your child and how to help them.

toilet training and continence

Toilet training can have a number of different causes and as a result require a range of approaches to manage and resolve issues.

Our Guide for Parents helps you understand your child’s individual needs when toilet training.

Our infographic Guide to Toilet Training is a visual aid to help you understand common problems and offers techniques to help.

managing behaviour

Some behaviours are challenging for professionals and teachers as well carers and parents looking after children with a brain condition.

Download our Managing Challenging Behaviour Factsheet.

Our Guide to Pain helps you identify and manage pain in a child who is unable to communicate verbally.

understanding my child's condition

Knowledge based on current research gives you the power to help your child, whatever their diagnosis.

You can borrow a book on your child’s condition from our library to help your understanding.

Our Guide to Research About Childhood Brain Conditions provides an introduction to research and offers advice on how to find good quality research and information.

Our Services

We offer a range of free services that enrich the lives of children with brain conditions and support their families and carers.

Sleep Service

Sleep Advice Service

Advice and support helping you and your child get a good night’s sleep.

Library

Toy and Book Library

Borrow specialist books and toys from our free and easy to use library.

Parent Guides

Parent Guides

Comprehensive guides to legal, social, financial, educational and health issues. 

Cerebra Innovation Centre

Cerebra Innovation Centre

See how our dedicated team in Swansea might help your child with an incredible invention.

LEap

Legal Rights Service

Get information and help about your legal rights to health and social care services.